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	<title>Observer &#187; Down Syndrome</title>
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		<title>Observer &#187; Down Syndrome</title>
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		<title>Zero Dark Thirty Death Ruled Homicide (Video)</title>

		<comments>http://observer.com/2013/02/zero-dark-thirty-death-ruled-homicide-video/#comments</comments>
		<pubDate>Mon, 18 Feb 2013 18:48:56 -0400</pubDate>
					<link>http://observer.com/2013/02/zero-dark-thirty-death-ruled-homicide-video/</link>
			<dc:creator>Drew Grant</dc:creator>
				
		<guid isPermaLink="false">http://observer.com/?p=288200</guid>
		<description><![CDATA[<p><div id="attachment_288213" class="wp-caption alignleft" style="width: 310px"><a href="http://observer.com/2013/02/saylor/" rel="attachment wp-att-288213"><img class="size-medium wp-image-288213" alt="The victim, Robert Ethan Saylor (ABC)" src="http://nyoobserver.files.wordpress.com/2013/02/saylor.jpg?w=300" width="300" height="223" /></a><p class="wp-caption-text">The victim, Robert Ethan Saylor (ABC)</p></div></p>
<p>Today's ruling won't bring back Robert Saylor, the young man who died in police custody after employees of a Frederick, MD multiplex called the cops on the 26-year-old with Down Syndrome for trying to sit through a second screening of <em>Zero Dark Thirty</em>. (He had only paid for one viewing.) But the court's decision on Friday to call the death what it was--a homicide--is a step in the direction of justice, which is more than can be said for the case thus far.</p>
<p><!--more--></p>
<p>Here is the order of events from the evening, <a href="http://www.wjla.com/articles/2013/02/robert-saylor-death-ruled-a-homicide-85287.html#ixzz2LITlikO4">according to ABC's Channel 7</a>:</p>
<blockquote><p>Saylor was at a movie theater with a health aide in Frederick on the night of the incident. He had just watched Zero Dark Thirty and refused to leave the theater after the film ended, authorities say.</p>
<p>Three deputies were called to handle the situation. <a href="http://www.wjla.com/articles/2013/01/robert-saylor-after-being-handcuffed-at-frederick-movie-theater-84206.html">Saylor was handcuffed and was allegedly resisting arrest when he had what authorities describe as a medical emergency.</a></p>
<p>According to a law enforcement source familiar with the case, the 26-year-old went into distress when he was put face down on the ground.</p>
<p>Deputies removed the handcuffs and took him to a hospital, where he was later declared deceased.</p></blockquote>
<p><em>Frederick New Post</em> wrote that Mr. Saylor died of asphyxiation, adding that "the deputies who were with Saylor at the time of his death, identified as Lt. Scott Jewell, Sgt. Rich Rochford and Deputy First Class James Harris, continue to work their normal assignments while the case is being investigated."</p>
<p>All three deputies "exercised their rights under the Law Enforcement Officers' Bill of Rights and have not made statements in the case." Frederick County State's Attorney Charlie Smith said he won't pursue a "partial file," since the medical examiner has only provided them the cause and manner of death. The same goes for the internal investigation in the police department, which is still waiting on information like the location of Saylor's caretaker, and whether or not there were any witnesses before they try to extract statements from the officers' involved.<br />
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		<content:encoded><![CDATA[<p><div id="attachment_288213" class="wp-caption alignleft" style="width: 310px"><a href="http://observer.com/2013/02/saylor/" rel="attachment wp-att-288213"><img class="size-medium wp-image-288213" alt="The victim, Robert Ethan Saylor (ABC)" src="http://nyoobserver.files.wordpress.com/2013/02/saylor.jpg?w=300" width="300" height="223" /></a><p class="wp-caption-text">The victim, Robert Ethan Saylor (ABC)</p></div></p>
<p>Today's ruling won't bring back Robert Saylor, the young man who died in police custody after employees of a Frederick, MD multiplex called the cops on the 26-year-old with Down Syndrome for trying to sit through a second screening of <em>Zero Dark Thirty</em>. (He had only paid for one viewing.) But the court's decision on Friday to call the death what it was--a homicide--is a step in the direction of justice, which is more than can be said for the case thus far.</p>
<p><!--more--></p>
<p>Here is the order of events from the evening, <a href="http://www.wjla.com/articles/2013/02/robert-saylor-death-ruled-a-homicide-85287.html#ixzz2LITlikO4">according to ABC's Channel 7</a>:</p>
<blockquote><p>Saylor was at a movie theater with a health aide in Frederick on the night of the incident. He had just watched Zero Dark Thirty and refused to leave the theater after the film ended, authorities say.</p>
<p>Three deputies were called to handle the situation. <a href="http://www.wjla.com/articles/2013/01/robert-saylor-after-being-handcuffed-at-frederick-movie-theater-84206.html">Saylor was handcuffed and was allegedly resisting arrest when he had what authorities describe as a medical emergency.</a></p>
<p>According to a law enforcement source familiar with the case, the 26-year-old went into distress when he was put face down on the ground.</p>
<p>Deputies removed the handcuffs and took him to a hospital, where he was later declared deceased.</p></blockquote>
<p><em>Frederick New Post</em> wrote that Mr. Saylor died of asphyxiation, adding that "the deputies who were with Saylor at the time of his death, identified as Lt. Scott Jewell, Sgt. Rich Rochford and Deputy First Class James Harris, continue to work their normal assignments while the case is being investigated."</p>
<p>All three deputies "exercised their rights under the Law Enforcement Officers' Bill of Rights and have not made statements in the case." Frederick County State's Attorney Charlie Smith said he won't pursue a "partial file," since the medical examiner has only provided them the cause and manner of death. The same goes for the internal investigation in the police department, which is still waiting on information like the location of Saylor's caretaker, and whether or not there were any witnesses before they try to extract statements from the officers' involved.<br />
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			<media:title type="html">dgrantobserver</media:title>
		</media:content>

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			<media:title type="html">The victim, Robert Ethan Saylor (ABC)</media:title>
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	</item>
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		<title>Of Sound Mind: Falling, the Tragic Tale of an Embattled Family Struggling to Cope With an Autistic Son Brings an Emotional Force to Weighty Subject</title>

		<comments>http://observer.com/2012/10/falling-rex-reed-daniel-everidge/#comments</comments>
		<pubDate>Tue, 16 Oct 2012 19:04:25 -0400</pubDate>
					<link>http://observer.com/2012/10/falling-rex-reed-daniel-everidge/</link>
			<dc:creator>Rex Reed</dc:creator>
				
		<guid isPermaLink="false">http://observer.com/?p=269981</guid>
		<description><![CDATA[<p><div id="attachment_270003" class="wp-caption alignleft" style="width: 310px"><a href="http://observer.com/2012/10/falling-rex-reed-daniel-everidge/falling0019/" rel="attachment wp-att-270003"><img class="size-medium wp-image-270003" title="Falling0019" alt="" src="http://nyoobserver.files.wordpress.com/2012/10/falling0019.jpg?w=300" height="241" width="300" /></a><p class="wp-caption-text">Everidge and Murney in <em>Falling</em>.</p></div></p>
<p>Graceful writing, great acting, exquisite direction, suspense, profound subject matter—you rarely find even one of those elements in a contemporary play opening in commercial New York theater, and <i>never</i> all in the same play at the same time. That’s what makes <i>Falling </i>such a shock. It teaches you something and leaves you sated—and it rocks. <!--more--></p>
<p>For 75 minutes without intermission, this play about the profound effects of an autistic child on a long-suffering family packs a huge emotional punch in the brief time it’s been allotted down at the Minetta Lane Theatre Off Broadway. Deanna Jent, the author, has based it on her own family. And Lori Adams, the director, has wrenched every ounce of juice from its reservoir of emotions, like water from a dish towel. From the minute the main character enters, a humongous shadow of toxic danger looms in the rooms of the Martin family, sucking the oxygen out of the air. This would be Josh, an autistic 18-year-old who has already lived longer than anyone predicted. Josh is played with electrifying force by an actor from San Antonio, Texas, named Daniel Everidge. Gigantic and overweight, his limbs never hit the spot where they ought to be and his tongue has a mind of its own. Walking around in circles, tracing invisible objects with his fingers, fixated on phrases (“No school—school is stuck, no school—school is stuck!”) that never end, his head protruding from his neck like a stork’s, Mr. Everidge does not lead you into the darkness of his mental disorder with soft gloves. He kicks you out of your senses. From the minute he sails onstage, terrifying his parents and sending his sister fleeing from the room, I thought, “What a shame this remarkable talent will never work again—there are so few roles for autistic actors.” Mr. Everidge is mind-bogglingly believable.</p>
<p>The rest of the cast that revolves around him is equally fine in less showy roles. Julia Murney takes a detour from her usual musical comedy gigs to play his mother—a woman who sacrificed a normal life when Josh was born, preferring to care for him at home, away from judgmental critics and frightened onlookers. Sometimes, in an unusual moment of privacy, she sings along with rock tunes, indulging her fantasy of being a pop star—a dream she abandoned long ago. Daniel Pearce is the battered father, wrestling with the burden of putting his son in a group home. Jacey Powers is the sister, whose own needs fall on deaf ears. Celia Howard is the visiting grandmother, sheltered from the truth because she lives so far away, but suddenly slammed into reality when her grandson repeatedly pulls a string attached to a box on an upper shelf that empties a pile of feathers on his head, screeching with mad glee. Strapped into a child-restraint device that circles his body like a backpack, Josh further leaves the family aghast when he reaches inside his clothes to twist his nipples or masturbate.</p>
<p>Yes! This soul-rending play—from what I know about families living with autism, Down syndrome and other mental challenges (more than you know)—is the first time so much medical and psychological research has been expounded onstage. Ms. Jent, who appeared the night I saw the play and participated in a post-performance Q&amp;A, gets the agonizing facts right. It’s a way to keep from falling into a pit of sadness and self-pity from which there is no escape. It’s a really hard play to watch, especially when Josh turns violent and almost kills the parents. But you do learn things. Thanks for sharing.</p>
<p>You learn how unselfishness can lead to self-destruction when years of trial and error never pay off. Every family activity is disrupted, personal belongings are wrecked, a simple family meal together in peace takes on the nerve-jangling tension of a bleak melodrama because the sight of people eating food grosses Josh out. Worse still, a lifetime of Josh’s presence has left everyone questioning his or her own sanity. Living with the threat of potential carnage has turned their existence into an empty landscape. What’s the alternative? Institutions for autistic people are unsafe, and there are long waiting lists to get in. Social workers and home care providers run in the opposite direction. The sister, robbed of her own voice, tries to conceal how much she hates and resents her brother, but finally blurts “I just wish he would go away forever!” The mother elects to keep her Gethsemane at home no matter how much it means she neglects everyone else or what toll it takes on the rest of the family. The father has lost his strength as a provider and watched his marriage fall apart. The grandmother’s answer is prayer. In the end, nothing changes. Life goes on, despite the occasional fantasy in which Josh does indeed die, opening a door to survival that slams shut again when the dream ends.</p>
<p><i>Falling </i>is traumatizing. It is also broadening and enlightening. The writing is precise and dead to rights. The direction gives the impression that the actors have been left enough space to make discoveries of their own. The evening goes in enough unorthodox directions to keep you transfixed. How wonderful that it goes on just long enough to make you want a sequel.</p>
<p><i>rreed@observer.com</i></p>
]]></description>
		<content:encoded><![CDATA[<p><div id="attachment_270003" class="wp-caption alignleft" style="width: 310px"><a href="http://observer.com/2012/10/falling-rex-reed-daniel-everidge/falling0019/" rel="attachment wp-att-270003"><img class="size-medium wp-image-270003" title="Falling0019" alt="" src="http://nyoobserver.files.wordpress.com/2012/10/falling0019.jpg?w=300" height="241" width="300" /></a><p class="wp-caption-text">Everidge and Murney in <em>Falling</em>.</p></div></p>
<p>Graceful writing, great acting, exquisite direction, suspense, profound subject matter—you rarely find even one of those elements in a contemporary play opening in commercial New York theater, and <i>never</i> all in the same play at the same time. That’s what makes <i>Falling </i>such a shock. It teaches you something and leaves you sated—and it rocks. <!--more--></p>
<p>For 75 minutes without intermission, this play about the profound effects of an autistic child on a long-suffering family packs a huge emotional punch in the brief time it’s been allotted down at the Minetta Lane Theatre Off Broadway. Deanna Jent, the author, has based it on her own family. And Lori Adams, the director, has wrenched every ounce of juice from its reservoir of emotions, like water from a dish towel. From the minute the main character enters, a humongous shadow of toxic danger looms in the rooms of the Martin family, sucking the oxygen out of the air. This would be Josh, an autistic 18-year-old who has already lived longer than anyone predicted. Josh is played with electrifying force by an actor from San Antonio, Texas, named Daniel Everidge. Gigantic and overweight, his limbs never hit the spot where they ought to be and his tongue has a mind of its own. Walking around in circles, tracing invisible objects with his fingers, fixated on phrases (“No school—school is stuck, no school—school is stuck!”) that never end, his head protruding from his neck like a stork’s, Mr. Everidge does not lead you into the darkness of his mental disorder with soft gloves. He kicks you out of your senses. From the minute he sails onstage, terrifying his parents and sending his sister fleeing from the room, I thought, “What a shame this remarkable talent will never work again—there are so few roles for autistic actors.” Mr. Everidge is mind-bogglingly believable.</p>
<p>The rest of the cast that revolves around him is equally fine in less showy roles. Julia Murney takes a detour from her usual musical comedy gigs to play his mother—a woman who sacrificed a normal life when Josh was born, preferring to care for him at home, away from judgmental critics and frightened onlookers. Sometimes, in an unusual moment of privacy, she sings along with rock tunes, indulging her fantasy of being a pop star—a dream she abandoned long ago. Daniel Pearce is the battered father, wrestling with the burden of putting his son in a group home. Jacey Powers is the sister, whose own needs fall on deaf ears. Celia Howard is the visiting grandmother, sheltered from the truth because she lives so far away, but suddenly slammed into reality when her grandson repeatedly pulls a string attached to a box on an upper shelf that empties a pile of feathers on his head, screeching with mad glee. Strapped into a child-restraint device that circles his body like a backpack, Josh further leaves the family aghast when he reaches inside his clothes to twist his nipples or masturbate.</p>
<p>Yes! This soul-rending play—from what I know about families living with autism, Down syndrome and other mental challenges (more than you know)—is the first time so much medical and psychological research has been expounded onstage. Ms. Jent, who appeared the night I saw the play and participated in a post-performance Q&amp;A, gets the agonizing facts right. It’s a way to keep from falling into a pit of sadness and self-pity from which there is no escape. It’s a really hard play to watch, especially when Josh turns violent and almost kills the parents. But you do learn things. Thanks for sharing.</p>
<p>You learn how unselfishness can lead to self-destruction when years of trial and error never pay off. Every family activity is disrupted, personal belongings are wrecked, a simple family meal together in peace takes on the nerve-jangling tension of a bleak melodrama because the sight of people eating food grosses Josh out. Worse still, a lifetime of Josh’s presence has left everyone questioning his or her own sanity. Living with the threat of potential carnage has turned their existence into an empty landscape. What’s the alternative? Institutions for autistic people are unsafe, and there are long waiting lists to get in. Social workers and home care providers run in the opposite direction. The sister, robbed of her own voice, tries to conceal how much she hates and resents her brother, but finally blurts “I just wish he would go away forever!” The mother elects to keep her Gethsemane at home no matter how much it means she neglects everyone else or what toll it takes on the rest of the family. The father has lost his strength as a provider and watched his marriage fall apart. The grandmother’s answer is prayer. In the end, nothing changes. Life goes on, despite the occasional fantasy in which Josh does indeed die, opening a door to survival that slams shut again when the dream ends.</p>
<p><i>Falling </i>is traumatizing. It is also broadening and enlightening. The writing is precise and dead to rights. The direction gives the impression that the actors have been left enough space to make discoveries of their own. The evening goes in enough unorthodox directions to keep you transfixed. How wonderful that it goes on just long enough to make you want a sequel.</p>
<p><i>rreed@observer.com</i></p>
]]></content:encoded>
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		<slash:comments>1</slash:comments>
	
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			<media:title type="html">rreed</media:title>
		</media:content>

		<media:content url="http://nyoobserver.files.wordpress.com/2012/10/falling0019.jpg?w=300" medium="image">
			<media:title type="html">Falling0019</media:title>
		</media:content>
	</item>
		<item>
				
		<title>Acting with Down&#8217;s: Exploitative or Inspirational?</title>

		<comments>http://observer.com/2011/11/acting-with-downs-exploitative-or-inspirational/#comments</comments>
		<pubDate>Wed, 30 Nov 2011 15:06:34 -0400</pubDate>
					<link>http://observer.com/2011/11/acting-with-downs-exploitative-or-inspirational/</link>
			<dc:creator>Drew Grant</dc:creator>
				
		<guid isPermaLink="false">http://www.observer.com/?p=202390</guid>
		<description><![CDATA[<p><div id="attachment_202409" class="wp-caption alignleft" style="width: 239px"><a rel="attachment wp-att-202409" href="http://www.observer.com/2011/11/acting-with-downs-exploitative-or-inspirational/girlfriend-movie-poster/"><img class="size-medium wp-image-202409" title="Girlfriend-Movie-Poster" src="http://nyoobserver.files.wordpress.com/2011/11/girlfriend-movie-poster.jpg?w=229&h=300" alt="" width="229" height="300" /></a><p class="wp-caption-text">Evan Sneider in &#039;Girlfriend&#039;</p></div></p>
<p>One of the most controversial elements of <strong>Ryan Murphy</strong>'s shows like <em>Glee </em> and <em>American Horror Story</em> i<a href="http://www.facebook.com/NationalDownSyndromeSociety/posts/10150331351579869">s his use of actors with Downs Syndrome</a>, and how they are portrayed/treated by the other characters.</p>
<p>This issue was at the front of our mind when talking to producer <strong>Shaun O'Banion</strong> Monday evening at the Andaz Hotel. His film, <a href="http://www.imdb.com/title/tt1470859/"><em>Girlfriend</em></a>, had just won The Gotham Independent Movie's Audience Award.</p>
<p><em>Girlfriend </em>revolves around Evan, a young man with Down's Syndrome, who falls in love with a girl he went to high school with. <strong>Evan Sneider</strong> who plays the lead, is a 33-year-old actor with high-functioning Down's Syndrome.<br />
<!--more--><br />
"It was unexpected and completely awesome," Mr. O'Banion told us about the night's win. "We were up against Elmo (<em>Being Elmo: A Puppeteer's Story</em>) and <em>First Grader</em>, which were both tremendous films." Mr. O'Banion had become involved with the project through writer/director <strong>Justin Lerner</strong>, who had gone to high school with Mr. Sneider.</p>
<p>"It was a brilliant script. It was courting some attention, not necessarily in a great way. It was pushing limits. It's not exploitative...the reason the film has won so many awards at other festivals is that if Evan is there after the screening, people can see how different he is than his character. I think they realize it's a performance...that he's an actor, and he's really funny in real life. In the movie he's so quiet, and kind of tortured, but in real life he's totally boisterous and tells jokes."</p>
<p>We asked Mr. O'Banion if he had any reservations about working with a differently abled person.</p>
<p>"I was initially very scared, because I hadn't had any experience with anyone with Down's, personally. It was like 'Is he going to hit marks, is he going to need cue cards, will he memorize his lines? But Evan is a pro...he comes from a musical theater background.</p>
<p>At the end of our movie we tag the credits with the group <a href="http://www.r-word.org/">Rword.org</a>. They are trying to eradicate the word 'retard' from our lexicon, because it doesn't mean what people use it for. It doesn't mean stupid. We had an incident when the movie trailer first went on YouTube that the Internet trolls would start making comments about Evan. It was very hurtful to him. So we're really trying to make people aware of the group, and of people like Evan, who is just amazing."</p>
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		<content:encoded><![CDATA[<p><div id="attachment_202409" class="wp-caption alignleft" style="width: 239px"><a rel="attachment wp-att-202409" href="http://www.observer.com/2011/11/acting-with-downs-exploitative-or-inspirational/girlfriend-movie-poster/"><img class="size-medium wp-image-202409" title="Girlfriend-Movie-Poster" src="http://nyoobserver.files.wordpress.com/2011/11/girlfriend-movie-poster.jpg?w=229&h=300" alt="" width="229" height="300" /></a><p class="wp-caption-text">Evan Sneider in &#039;Girlfriend&#039;</p></div></p>
<p>One of the most controversial elements of <strong>Ryan Murphy</strong>'s shows like <em>Glee </em> and <em>American Horror Story</em> i<a href="http://www.facebook.com/NationalDownSyndromeSociety/posts/10150331351579869">s his use of actors with Downs Syndrome</a>, and how they are portrayed/treated by the other characters.</p>
<p>This issue was at the front of our mind when talking to producer <strong>Shaun O'Banion</strong> Monday evening at the Andaz Hotel. His film, <a href="http://www.imdb.com/title/tt1470859/"><em>Girlfriend</em></a>, had just won The Gotham Independent Movie's Audience Award.</p>
<p><em>Girlfriend </em>revolves around Evan, a young man with Down's Syndrome, who falls in love with a girl he went to high school with. <strong>Evan Sneider</strong> who plays the lead, is a 33-year-old actor with high-functioning Down's Syndrome.<br />
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"It was unexpected and completely awesome," Mr. O'Banion told us about the night's win. "We were up against Elmo (<em>Being Elmo: A Puppeteer's Story</em>) and <em>First Grader</em>, which were both tremendous films." Mr. O'Banion had become involved with the project through writer/director <strong>Justin Lerner</strong>, who had gone to high school with Mr. Sneider.</p>
<p>"It was a brilliant script. It was courting some attention, not necessarily in a great way. It was pushing limits. It's not exploitative...the reason the film has won so many awards at other festivals is that if Evan is there after the screening, people can see how different he is than his character. I think they realize it's a performance...that he's an actor, and he's really funny in real life. In the movie he's so quiet, and kind of tortured, but in real life he's totally boisterous and tells jokes."</p>
<p>We asked Mr. O'Banion if he had any reservations about working with a differently abled person.</p>
<p>"I was initially very scared, because I hadn't had any experience with anyone with Down's, personally. It was like 'Is he going to hit marks, is he going to need cue cards, will he memorize his lines? But Evan is a pro...he comes from a musical theater background.</p>
<p>At the end of our movie we tag the credits with the group <a href="http://www.r-word.org/">Rword.org</a>. They are trying to eradicate the word 'retard' from our lexicon, because it doesn't mean what people use it for. It doesn't mean stupid. We had an incident when the movie trailer first went on YouTube that the Internet trolls would start making comments about Evan. It was very hurtful to him. So we're really trying to make people aware of the group, and of people like Evan, who is just amazing."</p>
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