TRENTON – The Senate Health Committee passed S1999, which requires that infants be screened for the following lysosomal disorders: Krabbe, Pompe, Gaucher, Fabry, and Niemann-Pick diseases, within six months after various things occur, including registration with the FDA of the necessary reagents, availability of the necessary reagents from the federal Centers for Disease Control and Prevention; availability of quality assurance testing methodology; and acquisition by the Department of Health and Senior Services of the equipment necessary to implement the screening tests.
The bill is sponsored by Sens. Anthony Bucco, (R-25), Denville, and Loretta Weinberg, (D-37), Teaneck, among others.
Sen. Robert Singer raised the issue of the bill’s unknown costs. Chair Sen. Loretta Weinberg acknowledged that issue, and said the sponsor, Bucco, requested the bill be released and promised to address that concern.
The bill cleared unanimously.